IQ Requirements Hindering Families

From Disability Scoop: Determining whether or not an adult with a disability qualifies for significant assistance often comes down to one factor: IQ score. Trouble is that IQ and ability don't always match up. Link to article: http://www.disabilityscoop.com/2010/04/23/iq-requirements/7779/

P2P USA: What It Means to You & Me

Forwarded by Susan Atkins, State P2P Coordinator and submitted by Lauri Gerber, Garden City Center:

"When I was asked to go to a national director's meeting in Washington, D.C., I was excited and nervous and not sure I was the right person. That's a long way from home. I made the decision to go. I knew our Parent To Parent program is important but just did not realize how important. I have only been with Families Together for a year and a half and did not get the opportunity to use their services while my son was young. I am sure if I had, I would have survived a lot easier than I did. I had a very supportive family, but they did not always understand what I or my child was going through. I was so busy coping; I did not know what I needed.

Is there a way to know what information and resources are out there to help you? The P2P USA Board is an amazing group of dedicated women that care about people they do not even know. They have been there. The one thing that was discussed is that it does not matter how educated or how much parenting experience you have, when a child with a disability is born or a child has an accident or illness that leaves them with a disability, there are lots of things that a parent needs to know to be able to provide the best possible outcome for that child. That is what keeps them motivated. They shared the example of Betsy Santelli. Betsy did the research for the Parent To Parent program funded by the Beach Center in Kansas. It was a randomized control research study of the highest quality, and is one of only 15 done to test different ways to help parents. Betsy built the Parent To Parent program. She is no longer with us but her legacy lives on, especially in the women who knew her and the many lives she touched.

Seeing the dedication of the Board of Directors of Parent To Parent USA is both amaxing and humbling. They believe so earnestly in this program. They are all volunteers from across the United States. There is no dedicated funding. They have one working meeting a year when they get together and do everything else by phone or internet. This meeting was made possible through donations from other organizations. The Board has done a lot of work and are willing to do whatever it takes to get our families what they need. Look at their website at http://www.p2pusa.org

During this meeting the Board wanted to know what local programs were seeing as needs and how the Board could use their knowledge and contacts to lead the Parent to Parent programs into the future. They are partnering with many people at the federal level who believe in this program. It is their goal to lead the way and make things happen that will improve services to families. We need funding but more importantely people are realizing we need partnerships and cooperation instead of competition. The old saying, 'It takes a community to raise a child' is especially true when the child has a disability. Watch what our governing bodies are doing and let them know what is important in your family's situation. There are people with knowlwdge, contacts and research working for us. I think it is important you know that. It is important to do our part also. Help them be the force for us. They have the will. Do you?"

New Ways to Connect with the WA Department of Early Learning

Washington State Department of Early Learning (DEL) has announced the launch of their blog and Facebook page:
DEL Connect (http://delconnect.blogspot.com)
DEL Facebook Page: (http://www.facebook.com/pages/Olympia-WA/Washington-State-Department-of-Early-Learning/366437744745)
Also, learn more about the Kindergarten Readiness Pilot (WaKIDS) at http://www.del.wa.gov/development/Kindergarten/pilot.aspx
Go to the DEL website at http://www.del.wa.gov for more information.

Genetic Testing Reduces Number of Babies With Inherited Diseases

From CEC Smartbrief: The widespread adoption of prenatal genetic testing has resulted in the decline of infants born with cystic fibrosis and other genetic disorders, according to this Associated Press analysis. Although genetic screening raises moral issues including abortion and embryo destruction, some couples and ethnic groups are using it to prevent diseases from being passed on. Go to http://www.washingtonpost.com/wp-dyn/content/article/2010/02/17/AR2010021700003.html for the entire article.

CDC: Down Syndrome Cases At Birth Increased

According to the Centers for Disease Control & Prevention, the total number of cases of Down Syndrome at birth in the US increased by 24.2% from 1979-1983 to 1999-2003 in 10 regions. Go to http://www.cdc.gov/features/dsdownsyndrome/ for the full article.

Parents Rank Schools on Emotional Support for Students

From CEC SmartBrief: A recent report by University of Michigan C.S. Mott Children's Hospital included results of a survey given to parents asking how well schools responded to the emotional and behavioral needs of students. Results showed only one-third gave primary schools an A, and less than 25% gave secondary schools an A. The report concluded that if funds are restricted to instructional services at the expense of emotional and behavioral supports, student learning may suffer. Los Angeles Times/Booster Shots blog (1/20)

BBB Alerts Consumers About U.S. Census Workers

With the U.S. Census process beginning, the Better Business Bureau (BBB) advises people to be cooperative, but cautious, so as not to become a victim of fraud or identity theft. Learn more at http://www.bbb.org/